Personal Goals

9/11 Heroes Run, Annapolis, MD

A wise friend recently told me how he used to time himself running.  5 miles.  6 miles.  Whatever length, he'd check his performance and work to shave seconds off.  But then, he says, he got older, and he stopped obsessing.  Now he just runs for the pure joy of it.  He's still in great shape.  In a recent 5K race, where he finished at the top of his age group, he didn't even bother to wear a watch.

Clearly I haven't reached this level of maturity.  In August I shaved 2/10th's of a second of my (slow) 100 meter sprint time.  This month I averaged 14.2 miles per hour bicycling 22 miles around BWI airport.  October will mark 4 stable years without a pulmonary heart valve ... and, despite having no real control over the situation, I'm shooting for 5 :)

So yes, I recently had a scheduled checkup at Johns Hopkins Hospital.  My cardiologist was happy to hear I'm remaining plenty active (actually more than ever) and feeling great.  I was happy to hear that, despite some crazy sounds my heart continues to present to the curious stethoscope wearer, everything seems stable and there are no real changes from my visit 6 months ago.

As with each visit, Ann Marie and I learned a lot in our conversation with Dr. Ringel.  He explained that in my case he has had to "reset his thinking", because he knows he has the tools to "fix" my condition.  But since no fix is permanent, I'm kind of 4 years ahead of the game.  Assuming I remain stable, the clock doesn't starting ticking until I get a new valve put in.  And believe me, I'm happy to wait.

So unless symptoms appear sooner, my next checkup is 10 months away.  Should I be ready for a "fix" then, I'll have flexibility for scheduling a procedure.  You can be sure, unless there's a clinical reason to act quickly, I'll push the procedure until after I hit my 5 year mark :)

Taking a deep breath

All is well!  The stent is in fine shape.  What appeared as a wobble in the echocardiogram a ~week ago was likely caused by the stent's manufacture.  The flouroscopy today showed no fractures and no cause for concern.  Nothing beats having the right test with a room full of high-tech equipment and well-trained professionals.

It feels great to be back in control, at least to some degree, of when my next medical procedure will be.  I'll stay fit, eat well, and hope that my heart stays happy as long as possible.  I'm happy to be the one to determine my destiny, not some bit of hardware, thank you very much!

As always, thanks for listening.

Prepping for test tomorrow

My test at Johns Hopkins Hospital is scheduled for 6am tomorrow.

The test itself is easy and requires no clinical preparation.  It's relatively quick.  There's no fasting required.  We'll know the results immediately   It's essentially like an x-ray but I'll need to wear a hospital gown.

Mentally, however, I need to feel prepared for the possibility that some sort of procedure will follow in the days or weeks (maybe hours?) afterward.

So this weekend I started and today I'm finishing as much as I can.  Got new cellphones.  Getting the tax paperwork finished.  Fixing some computer issues.  Finishing some college things with Eddie.  Paying bills a few weeks out.  Having lunch with Ann Marie.  Hoping to play some cards tonight with the kids.

I'll update tomorrow with test results.  Thanks for reading!

Still stable, but a wobble

Was it really 9 months ago that I said I'd "write more when I have time" and "my next checkup will be in another six months"?  Yes and yes.  But considering my heart checkup was just this week (due to scheduling) I don't feel terrible for not writing, just a little guilty.

First I'll say I've been feeling great, especially since I started exercising more since the summer.  The great Fall weather, like-minded friends (and daughters!), long work days, and convenience of gyms & working out at home all helped motivate me. Just this week I re-ran the stairs at the Johns Hopkins outpatient building (pictured here) as a measure of my condition -- I've been doing that for a few years.  I ran 5 1/2 flights (165 steps) before needing to walk and then rest.

My echocardiogram this week, along with my cardiologist's expertise in interpreting such things, confirmed my heart is doing as well as I feel.  Both the right and left ventricles are performing well.  The right is enlarged as expected, but it hasn't grown since last year.  A measure of blood flow across the stent in my pulmonary artery hasn't changed either, indicating that artery hasn't changed in size.  And my aortic valve, which was the original problem we addressed in 2008, is happy.  All of these are very good things.

So while I'm doing great, there is an indication the stent is not.  A test in the next weeks will confirm, but it appears the integrity of the stent itself is in question.  If the test confirms the stent is structurally unsound, we'll have to act soon.

First, a refresher.  The stent is a wire mesh tube, 19mm (3/4 of an inch) in diameter, and maybe 65mm (2.5 inches) long.  The stent holds open the pulmonary artery at the heart, which is where the valve rejection (and narrowing) took place.  By design, the stent extends into the right ventricle a few millimeters, rather than stopping right at the interior wall.  This placement, I gather, either keeps tissue from covering the stent opening or the muscle crushing the end of the stent -- I don't actually know and, I suppose, it's academic.

The problem is a wobble.  When viewed in the echocardiogram, a 2 dimensional video, the end of stent inside the ventricle is moving as the heart functions.  This suggests one or more fractures in the metal.  Enough wobbling and the stent becomes structurally unsound, and ultimately the end breaks off.  To me, if I absolutely must have metal floating around in the body, inside the heart and on the way to the lungs is one of my very last choices.  And while my cardiologist says this wouldn't necessarily be as bad as it sounds, I'd much prefer to avoid it.

Thanks to the wonders of modern medicine, and a bit of radiation, a quick, non-invasive flouroscopy will determine the condition of the stent.  This 3D view will tell us whether the stent needs attention immediately, or whether we can monitor it over time.  The test isn't scheduled yet, but I expect it sometime in the next week or so.

In the meantime I'll avoid activities that might impact the chest, like kickboxing as my doctor joked.  Instead, I'll be preparing for some longer bike rides and, with Eddie's help, establishing a time for the 100 meter dash and working to improve it.

Thanks for listening, and look for a followup soon :-)